Global EditionASIA 中文雙語Fran?ais
Lifestyle
Home / Lifestyle / Health

Taking stronger steps

By Liu Xiangrui | China Daily | Updated: 2018-05-16 07:55
Share
Share - WeChat
A boy at the Wishbone Day event walk with his eyes covered to experience OI which may affect eyesight in some cases. [Photo provided to China Daily]

A group of 300 people took part in a charity hiking event held on May 6 at Chaoyang Park in Beijing to celebrate Wishbone Day, an international awareness event to highlight osteogenesis imperfecta-a brittle bone disease known as "China doll syndrome".

The participants included 10 sufferers of the genetic condition, supporting members of the public, staff members from the China-Dolls Center for Rare Disorders, the organizers behind the event, as well as volunteers from its partner organizations.

The Beijing center, founded by patients with rare disorders in 2008, is a nonprofit organization that provides care and relief services to OI sufferers and people with other rare diseases.

The center estimates that there are 100,000 people in China affected by OI, one of the lesser-known congenital disorders, which is characterized by fragile bones that are prone to breaking.

Osteogenesis imperfecta is the result of a mutation error of a gene that is responsible for the body's production of collagen, a fibrous protein found in bones and other tissues.

"Collagen in the bones is like what reinforced concrete is to buildings. Without enough concrete, buildings can easily collapse," explains OI expert Wang Yanzhou, director of the pediatric orthopedics department of Shandong Provincial Hospital.

According to Wang, sufferers of the disorder are not only afflicted by the constant threat of multiple bone fractures, but they can also develop other medical issues, such as muscle weakness, hearing loss, fatigue, joint laxity, curved bones, curvature of the spine, blue sclera, brittle teeth and a shortened stature.

1 2 3 Next   >>|
Most Popular
Top
BACK TO THE TOP
English
Copyright 1995 - . All rights reserved. The content (including but not limited to text, photo, multimedia information, etc) published in this site belongs to China Daily Information Co (CDIC). Without written authorization from CDIC, such content shall not be republished or used in any form. Note: Browsers with 1024*768 or higher resolution are suggested for this site.
License for publishing multimedia online 0108263

Registration Number: 130349
FOLLOW US
 
主站蜘蛛池模板: 国产精品高清久久久久久久| 最近更新中文字幕第一电影| 国产在线精品一区二区夜色| a级男女仿爱免费视频| 日韩aⅴ人妻无码一区二区| 亚洲网址在线观看| 老司机带带我在线精彩免费| 国产精品一区二区久久| babes性欧美高清| 无码国模国产在线观看| 亚洲国产一区二区三区| 疯狂做受xxxx高潮不断| 国产三级在线观看视频| 亚洲妇女水蜜桃av网网站| 99精品国产在这里白浆| 成在线人免费无码高潮喷水| 亚洲av之男人的天堂| 毛片试看120秒| 六月婷婷在线视频| 豪妇荡乳1一5白玉兰免费下载| 国产精品无码永久免费888| www一级毛片| 新婚之夜女警迎合粗大| 久碰人澡人澡人澡人澡人视频| 歪歪漫画在线观看页面免费漫画入口弹窗秋蝉 | 蜜桃AV无码免费看永久| 国产福利精品一区二区| 99heicom视频| 小兔子好大从衣服里跳出来| 久久av无码精品人妻糸列| 最新亚洲人成无码网www电影| 亚洲欧美一区二区三区| 男女特黄一级全版视频| 四虎国产精品永久在线网址| 黄瓜视频在线观看| 国产精品乱码一区二区三区| 99久久综合狠狠综合久久一区| 小兔子被蛇用两根是什么小说 | 久久人妻夜夜做天天爽| 校花哭着扒开屁股浣肠漫画| 亚洲精品无码mv在线观看网站|